Stepping Down

IMG_9359 It’s been a manic 5 years since having kids and running GAIN Inc. While its been an amazing experience being involved in GAIN Inc. and being Chair, the time has come for me to step down as Chair and the GAIN Inc. committee. As most of you know, life with toddlers, running a household and now the decision to go back to work will keep me more than busy, which is both exciting and overwhelming to say the least.

So the time has come to say goodbye, however, there are many people to thank. Firstly I’d like to sincerely thank the committee, members and sponsors past and present who have continually supported GAIN’s work and drive to help raise awareness of women’s gynae and sexual health and cancers. This has been achieved through seminars, support groups, events such as high teas and wine and cheese nights to name a few. Without the support GAIN Inc. would cease to exit. However, as we all know we need to continually support and help raise awareness of such issues to help break the silence of issues down under. Some women have been fortunate to never experience a gynae health issue but for many the pain, trauma and embarrassment continues to prevail. As women, we need to support each other and help each other though such issues.

Secondly, I would like to warmly thank Kath Mazzella, the founder of GAIN Inc. who continues to speak out for women and raise awareness on women’s gynae health and cancers. Kath continues to work tirelessly advocating for women’s gynae health and cancers along with her husband Tony who continues to support her. Kath’s passion, drive and persistence is beginning to see breakthroughs in the way communities are responding to women’s gynae and sexual health issues nationally and globally. Each year we continue to celebrate International Gynae Awareness Day on 10th September.

Thirdly, I would like to sincerely thank A/Prof. Graeme Boardley (Executive Director of Midwifery, Nursing and  Patient Support Services, Women and Newborn Health Service at King Edward  Memorial Hospital, and the co-lead for the Womens and Newborn’s Health Network) and The Right Honourable The Lord Mayor of Perth, Lisa Scaffidi who is the Ambassador of GAIN Inc. for their continued support to GAIN Inc. throughout the years.

Two extraordinary women, namely Catherine Aurubind (former Chair of GAIN) and Vanessa Watson (Gynae nurse) and who both continue to endure chronic pelvic pain will be taking over positions as Chair and Vice Chair respectively. Both Catherine and Vanessa currently run the pelvic pain support group at the GAIN office in Subiaco.

In closing, I wish the new committee and GAIN Inc. the very best in spreading the word and raising awareness of gynae and sexual health.

As we say, ‘Onwards and Upwards’.

Best wishes, Tina

Tina Schiavello, PhD

GAIN Inc. Chair

 

 

 

 

 

Share Your Story

Where has the time gone? This year has certainly gone fast as we are nearly approaching the festive season. Well, over the past  months we have been focusing on various aspects of GAIN, namely administration & social media. However, we would really appreciate if you can support GAIN by sharing your stories/experiences with us. We know gynae health is something women don’t often discuss with eachother & don’t always know who to ask or turn to. Most women we speak to have more than one issue & when often asked about their issue they often say, ‘we thought the pain is just normal & something you just live with’ or ‘I can’t talk about that, its to embarrassing’. This isn’t the case at all. By sharing your own personal experience, this will help us help others & help breakdown any stigma or taboo. All information such as name & other relevant information can be kept confidential. You can share your story by submitting the Share Your Story form on the home page or you can email me.

2015 and beyond….

I’ve always found it difficult to find the right work/life balance & being a mum has only made it harder for me. After a  very recent stay at Ngala (provider of Early Parenting & Early Childhood services) to improve my children’s sleep routine has this transpired…WOW… Subsequently, I hope by maintaining a good balance in my life between family, health and happiness can I concentrate again on the things I love & have passion for, one of my passions being HEALTH & in particular WOMENS HEALTH. This year at GAIN we will continue to provide information on women’s gynae health, however, 1) we really need your help in getting people to share their stories on any gynae issue & 2) ask if you know anyone that may volunteer some of their time in helping GAIN to contact myself by email at enquiries@gain.org.au

I wish everyone every success, good health, happiness and balance in 2015.

 

Chronic Pelvic Pain Support Group

Saturday 22nd Feb was the first Chronic Pelvic Pain Support Group meeting for 2014, which brought together men and women afflicted with various forms and severity of chronic pelvic pain (CPP) and pudendal nerve entrapment (PNE). The support group runs every second Saturday of each month in the GAIN Inc. office (Subiaco – opposite King Edward Memorial Hospital). It is run by two amazing women who have been on their own journey, dealing and managing with issues of CPP and PNE.

Attending the support groups has opened my eyes in learning and understanding what others are going through but most importantly how widespread the lack of understanding of such issues is as demonstrated among our communities (general and medical). Chronic pelvic pain and PNE can be so debilitating on all levels, namely affecting sufferers emotional, sexual, physical and mental states to the point where marriages have broken down and many sufferers have given up on life because of the extreme and continuous pain.

Due to the persistence that both Catherine and Vanessa have continued to pursue over the years in terms of finding the right diagnosis, treatment and management of CPP and PNE for themselves, other sufferers can now feel a sense of relief and degree of comfort as there is now more support and guidance through these two remarkable women available through the support group in WA to help sufferers know where to start and where to go to seek help, get a correct diagnosis of their pain issue, treatment and management.

Overall, this is another gynae health issue where people suffer in silence but due to the severity of the pain that people experience needs greater awareness of signs, symptoms, treatment, management and support. Overtime, I hope support groups like the one GAIN Inc. and HOPE offer to sufferers  will be in a better position to provide more resources, support and help to all sufferers.

If you know anyone that is suffering from CPP, genital pain, PNE or other please contact GAIN Inc.

Chairpersons Report

Happy New Year to all and a warm welcome to January. Hope everyone had a fun and safe festive season. Firstly, I would like to welcome our new committee for 2014. I look forward to working with the committee and taking GAIN Inc. to a new level particularly with social media. However, GAIN Inc. will continue to serve the general community by running a few events throughout the year, including IGAD day as well as continue to promote gynaecological and sexual health within the local community.

Please click here Chairmans report 2013.